I have Mitochondrial Myopathy, Avascular Necrosis in 8 bones and Primary Systemic Sjogran's. My story is a long one. To sum it up, my first goal was to see my 4 year old go to kindergarten (she was an October baby). I had to make it 15  months, it seemed so far off and systems within my body were failing rapidly.

I went from that goal 20 years ago to watching her recently graduate as a young doctor. All those years of grinding it out on the fly while simultaneously loving my daughter, husband and life came full circle at that moment. Then came the confirmation of the last disease.

I'd asked my doctor 18 months prior if that's what I had and was immediately rebuffed. If that could still happen to me, it could happen to anyone.

After I started losing vision rapidly, I asked my neuromuscular eye surgeon at a follow up appointment if he could set up the testing and he did. Before I left the building there was a plan. I didn't know it could be systemic, just like I had no idea of the consequence of not treating it. I have the rarest form with all the small print symptoms. I'm paying the price physically, but I've now seen even more suffering with women who have no idea how to move forward. It is not easy, it is the hardest thing you will ever do, but if you put in the effort, you will be rewarded. You just have to know what to do and come to the understanding that you and the illness can co-exist, allowing you the best possible life for yourself and your loved ones. It is possible and you deserve the chance.

I had to figure it out on my own, by myself. There is no doctor telling you how to live with any illness. They sent me from receiving my dx to a neuro psyche to be sure I wouldn't hurt myself that day. That was of little use, but when they give you the news, I suppose they have to cover themselves. My story is long, but I suffered the first 5 years with how to live in a chaotic, painful world while simultaneously loving my my family and learning to love myself again. That was perhaps the hardest part. The self sabotage that went through my head, well, it wasn't good. We need to learn to give ourselves the grace that we would generously extend to others.

I'm here for you because I never want to see another woman suffer like I did.There is a thriving life to be lived. Learn the steps to live it with joy and from a place of strength. You are not the illness. You are worthy, you did nothing wrong.

Realize your potential and start reclaiming your life, I promise, no matter your illness, it is possible. If you need help getting from where you are now to where you want to be in your life, there is help right now. Inquire about my 3 month program, or start off with one visit. Show up for yourself, your family and loved ones as your authentic self once again, it is well within your reach.